Cuidados intensivos pediátricoscalidad percibida por los progenitores

  1. Mª del Carmen Agra Tuñas
  2. Fátima Pérez Varela
  3. Eva Bello Rama
  4. Paula Mato Guerra
  5. Nuria Calviño Vieito
  6. Rubén Garrudo Díaz
  7. Manuela Pérez Rivas
  8. Antonio Rodríguez Núñez
Revista:
Metas de enfermería

ISSN: 1138-7262

Ano de publicación: 2018

Volume: 21

Número: 3

Páxinas: 4

Tipo: Artigo

DOI: 10.35667/METASENF.2019.21.1003081208 DIALNET GOOGLE SCHOLAR

Outras publicacións en: Metas de enfermería

Resumo

Objectives: to assess the quality of care offered at the Paediatric Intensive Care Unit (PICU) from the perspective of patient’s relatives. Method: a transversal study conducted at the PICU of the Hospital Clínico Universitario de Santiago de Compostela (A Coruña), between January, 1st, 2016 and January, 25th, 2017. The relatives of children discharged from the PICU within this period were invited to take part, and they were requested to complete the EMPATHIC-30 questionnaire, which consists in 30 items distributed into five dimensions. The study excluded hospitalizations < 24 hours, deaths, previous admissions in the past six months, and those cases with lack of knowledge of the language. Overall, 308 surveys were handed out. There was a descriptive analysis, and data were presented with mean and standard deviation (SD). Results: there was a collection of 181 surveys (58.8% of all likely cases); of these, 63.5% were completed by mothers, and 26% were for hospitalizations >7 days, 32% were referrals from other hospitals, and 30.4% were scheduled hospitalizations. On a 5 score, the mean (SD) satisfaction of parents was 4.5 (0.6). Regarding the different dimensions in the questionnaire, the scores were: unit organization: 4.7 (0.5), attitude of professionals: 4.6 (0.7), care and treatment: 4.5 (0.7), information: 4.4 (0.8), and family involvement: 4.3 (0.8). The worse rated items were: Interest by the staff for parents’ concerns: 3.9 (1.2), and parents’ involvement in decision making: 3.9 (1.2). Conclusions: parents of children admitted in the PICU rate very positively the quality of care conducted by professionals. However, there should be an improvement in the attitude and empathy by professionals, and family involvement should be encouraged in terms of decision making processes.

Referencias bibliográficas

  • Lindemann H. Why families matter. Pediatrics 2014 Oct; 134 Suppl 2:S97-103.
  • Pardavila Belio MI, Vivar CG. Needs of the family in the intensive care units: a review of the literature. Enferm Intensiva 2012; 23(2):51-67.
  • Rodríguez Núñez A, Crespo Suárez P, Martins de Oliveira Pereira Caldas C, Pérez Rodríguez MT, Martinon Torres F, Martinon Sánchez JM. Information and quality of care in a pediatric intensive care unit. Parents’ opinion. An Pediatr (Barc) 2004; 61(3):231-5.
  • Parra Cotanda C, Luaces Cubells C, Pou Fernández J. ¿Deberían estar presentes los padres durante los procedimientos invasivos en urgencias? An Pediatr (Barc) 2009; 70(3):293-6.
  • Acuerdo del Consejo Interterritorial para establecer unos criterios de calidad aplicables a las Unidades de Cuidados Intensivos Pediátricas y Neonatales del Sistema Nacional de Salud, que pretende impulsar y humanizar la asistencia [internet]. Madrid: Ministerio de Sanidad, Servicios Sociales e Igualdad. Gobierno de España; 2013. [citado 16 mar 2018]. Disponible en: http://www.msssi.gob.es/organizacion/sns/planCalidadSNS/pdf/DECALOGO_de_las_UCIS.pdf
  • De Dicastillo L. La enfermería infantil y los cuidados centrados en la familia. Enferm Clin. 2004; 1(2):83.
  • Committee on Quality Health Care in America, Institute of Medicine: Crossing the Quality Chasm: A New Health System for the 21st Century. Washington DC: The National Academies Press; 2001.
  • American Academy of Pediatrics. Principles for the development and use of quality measures. Pediatrics 2008; 121(2):411-8
  • Cleary PD. The increasing importance of patient surveys. Now that sound methods exist, patient surveys can facilitate improvement. BMJ 1999; 319:720-1.
  • Coulter A. Paternalism or partnership? Patients have grown up-and there’s no going back. BMJ. 1999; 319:719-20.
  • Flaatten H. The present use of quality indicators in the intensive care unit. Acta Anaesthesiol Scand 2012; 56:1078e83.
  • Cuidados intensivos pediátricos y atención al niño crítico. Informe técnico nº3 de la Sociedad Española de Cuidados Intensivos Pediátricos (SECIP). 2003.
  • Pilar Orive FJ, Basabe Lozano J, López Zuñiga A, López Fernández YM, Escudero Argaluza J, Latour JM. Traducción y validación al español del cuestionario EMPATHIC-30 para medir la satisfacción de los padres en cuidados intensivos. An Pediatr (Barc). 2017; pii:S16 95-4033(17)30311-9.
  • Wolfler A, Giannini A, Finistrella M, Salvo I, Calderini E, Frasson G, et al. Empowerment of PArents in THe Intensive Care Questionnaire: Translation and validation in Italian PICUs. Pediatr Crit Care Med. 2017; 18: e77- e85.
  • Shudy M, de Almeida ML, Ly S, Landon C, Groft S, Jenkins TL, et al. Impact of pediatric critical illness and injury on families: A systematic literature review. Pediatrics 2006; 118(Suppl 3):S203-S218.
  • Quenot JP, Rigaud JP, Chahraoui K. Is the level of satisfaction of families of patients in critical care improved by the quality of the information they receive? Intensive Care Medicine 2010; 36:S323.
  • Azoulay E, Pochard F, Kentish-Barnes N, Chevret S, Aboab J, Adrie C, et al. FAMIREA Study Group. Risk of post-traumatic stress symptoms in family members of intensive care unit patients. Am J Respir Crit Care Med. 2005; 171:987-94.
  • Leung NY, Chow SK. Attitudes of healthcare staff and patients’ family members towards family presence during resuscitation in adult critical care units. J Clin Nurs 2012; 21:2083-93.
  • Davidson JE, Aslakson RA, Long AC, Puntillo KA, Kross EK, Hart J, et al. Guidelines for family centered care in the neonatal, pediatric, and adult ICU. Crit Care Med 2017; 45:103-28.
  • Macdonald ME, Liben S, Carnevale FA. An office or a bedroom? Challenges for family-centered care in the pediatric intensive care unit. J Child Health Care. 2012; 16:237-49.
  • Zeschke J. Diminishing the experience of anxiety for parents of children admitted into the pediatric intensive care unit. Pediatric Critical Care Medicine 2011;1): A166-A167.
  • Hernández González A, Hermana Tezanos M, Hernández Rastrollo R, Cambra Lasaosa F, Rodríguez Núñez A, Faile I, et al. Encuesta de ética en las unidades de cuidados intensivos pediátricos españolas. An Pedriatr (Barc). 2006; 64(6):542-9.
  • Azoulay E, Pochard F, Chevret S, Adrie C, Annane D, Bleichner G, et al. FAMIREA Study Group. Half the family members of intensive care unit patients do not want to share in the decision-making process: A study in 78 French intensive care units. Crit Care Med 2004; 32:1832-8.
  • Grandjean C, Latour JM, Cotting J, Fazan MC, Leteurtre S, Ramelet AS. Measurement of parent satisfaction in the paediatric intensive care unit—translation, cultural adaptation and psychometric equivalence for the French-speaking version of the EMPATHIC-65 questionnaire. Intensive Crit Care Nurs. 2017; 38:40-5.
  • Witulska K, Migdal M, Sulich E, Latour J. The first polish study on parent satisfaction in Paediatric Intensive Care Unit-The EMPATHIC-30 Poland Study. Arch Dis Child [internet] 2014 [cited 16 mar 2018]; 99(2):A1-A620. Available from: http://adc.bmj.com/
  • Latour JM, Duivenvoorden HJ, Tibboel D, Hazelzet JA. EMPATHIC Study Group: The shortened Empowerment of Parents in the Intensive Care 30 questionnaire adequately measured parent satisfaction in pediatric intensive care units. J Clin Epidemiol 2013; 66: 1045-50.
Fonte de datos: Dialnet